DEAR RETINITIS PIGMENTOSA: AN OPEN LETTER TO MY MY VISION IMPAIRMENT

By Elin Williams (My Blurred World)

“I sometimes begrudgingly cast an eye over my blog’s archives, trying to pinpoint what posts shaped this online space into what it is today. I went as far back as January 2017 the other day and sitting there, at the beginning of the month, was an open letter I addressed to my vision impairment.”

“”I reluctantly clicked ‘read’, unsure of what words would greet me on the following page. Yes, I was right, I had every reason to cringe. Mind you, I might do exactly the same when looking back at this in 2023.

I carried on reading, curious as to what thoughts and feeling I captured on that day three years ago. My face was a picture of an array of unamused expressions as I neared the middle and then the end of the post and, amongst the depair I felt towards the words I had written, there was room in my mind to note how much had changed since I inevitably hit publish on the post. So many details of my vision impairment have changed in the mere three years that have passed by, so I though it was about time for an updated version.”

AN OPEN LETTER TO MY VISION IMPAIRMENT

“Dear Retinitis Pigmentosa

Do you remember how much I used to resent you? How much I wish you didn’t esist. It’s almost been 19 years since you first caused a symptom and this year marks 10 years since living with you meant that my eyesight was branded too poor to stay in the boundaries of ‘partially sighted’.

I no longer hate you. In fact, I accept you. But as you continue to steal more eyesight every day like a dog always wanting more food, always hungry for more, I remember the hate I used to feel for you so deeply.

You create this emptiness, a hole that doesn’t yet have the beating heart of acceptance and, although I don’t find myself lingering in that space as often anymore, it still exists. There’s familiarity rooted in that empty space; I remember it well and recognise it as a place where my mind wanders to when you present pain or cause my world to blur and fade more than it already has.”

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