“MY DISABLED WORLD” – THREE DAYS TO GO – AND HERE ARE SOME MORE OF YOUR POEMS

CLOSING DATE FOR ENTRIES 31st OCTOBER 2020

poetry@disabilitytalk.co.uk

VIRGIN MEDIA are joint sponsors of “My Disabled World”

A LIST OF OUR NOMINATED CHARITIES SO FAR

MS (twice);  Cancer Research (twice);  Rutherford School;  Crohn’s & Colitis;  British Heart Foundation (twice);  SCOPE (four times);  Revialize;  Shekinah;  Versus Arthritis (twice);  WWF; Alzheimer’s Society;  AMAZE (three times);  Sutton Nightwatch;  Stepping Stone Theatre for Mental Health (twice);  BRAKE;  MIND (seven times);  Children’s Hospice South West (Little Harbour);  Independent Lives;  SSAFA;  MNDA;  Bob Champion Cancer Charity;  Popsy Charity;  Invest in ME;  NCBI;  The Humane Society;  Dementia Care;  Headway UK;  Heart of Darts;  Rights of Women (twice);  Complex PTSD;  NASS (Ten times);  FSH Muscular Dystrophy;  Mencap;  Teach Us Too;  Simon Community Glasgow;  Action on Hearing Loss;  Spinal Injuries Association (twice);  Bay Area Lyme Foundation;  KEEN Oxford;  The Parasol Project; Caudwell LymeCo (SIX times); White Lodge;  Zetta;  Help For Heroes ; Retina UK; Horses helping People;  RSPCA;  Dogs Trust;  Jim Cronin Memorial Fund;  Daft As A Brush;  Smile Train Africa;  Share A Star;  The Dystonia Society:  Bendrigg Trust;  PHAB;  Spondylitis Association of America;  Pets As Therapy;  Teenage Cancer Trust; Warwickshire Vision Support;  Arthur Rank Hospice;  Synolos Social Enterprise;  Royal Society for the Blind (Adelaide);  CAROUSEL; The Baton;  Scottish Autism;  Autism Family Support (Oxford); Princess Alexandra Eye Pavilion and Dyspraxia Foundation UK

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After The Winter Night

I am cold
but when the frost is over
I will enjoy the heat
of the morning sun
After the winter night
I will pick the first flowers
That grow,
to keep them in my heart
until the next storm

Poem submitted by Lill Due whose favourite charity is NASS

You’re Entitled To A Life

You’re entitled to what will keep you fulfilled
You can get what you need and no one will question you
You’re entitled to dwellings that fit what you need
You’re entitled to life, you can live as you like

You’re allowed supplies to feed yourself
No one says you’re entitled, they know you’re not a cheat
You’re entitled to breathe, to not starve
You’re entitled to a life, you’ve got permission to survive

No one asks you what your body’s for
You’re not told that you’re faking, that you’re after rewards
They know you’re not a scrounger, you don’t have to prove your worth
They agree you’re entitled to your existence on this earth

You’re entitled to dignity, you don’t have to expose your life
People know what’s private, they won’t probe you for details
You can keep things to yourself and choose what to share
You’re entitled to your life not being invaded

You can leave your dwellings and seek good times
You have the benefits you need for a social life
You go to bed when you want to, you can do it all yourself
You’re entitled to independence, but you’re allowed someone else

You don’t have to protest so you can live like everyone
Everything’s set out, it all fits in with you
You won’t have things that you fought for taken away
You’re entitled to your life and they respect your rights

You’re entitled to a relationship and you can be understood
They’re attracted to you, they see what you can do
You won’t be dismissed, you’re not a misfit
You’re entitled to the closeness you need

You don’t have to prove you tell the truth
Assessors don’t prod you and investigate your life
You don’t have to show them what need to survive
You’re entitled to your life, you can stay dignified

You don’t have to change your routine to help others
When you hear of these people, you can just life your life
If their existence feels inconvenient
They’re not entitled to life, you won’t notice them die

You’re entitled to your life, cause your life is worth living
They’ll save you if you’re ill, you’re worth every resource
You won’t be sacrificed for someone more important
You’re entitled to a life, they’ll help you live, not die

Poem submitted by Sam Castell-Ward whose favourite charity is CAROUSEL

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A geek and nerd demeanour

A geek and nerd demeanour

My hopes and dreams were over
Sad wounds would not recover
I depend on four leaf clovers
My goals washed down the river

The errors were uncovered
How I had to really suffer
Getting tangled in much bother
Always hindered in bad weather

My jobs didn’t hold together
I couldn’t count, weigh or measure
Tempers would really lather
From my mother and father

The house slipped to slathers
As bills would quickly gather
With puzzling ledgers
Doors battered by debtors

I felt like a dirty beggar
Who had fallen to the cellar
Cued by lying fortune tellers
With misleading patter

I needed a propeller
My friendships were all severed
Like ill fit shoes with tremor

Crucified with the pressure

Worry hounded me with hammers
A victim of people's humour
Conversation was a stammer
A geek and nerd demeanour

Poem submitted by Chris Tait whose favourite charity is Scottish Autism

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Autism, Disability/Ability

I breathe the same air
I see the same sights
I hear the same sounds
I feel the same sunlight
Yet, sometimes, differently.
I learnt the same language
I speak the same language
But I remember thinking
With no words.
I can still think wordlessly
Sometimes my hesitancy
Is as I translate my
Thought to your words.
Sometimes I understand language
Differently.
I seek the same love
I seek understanding
I love deeply.
I know pain, and joy.
I look at our world
Perhaps I see it differently
Perhaps I sense it differently
But my sight is insight
Just as much as yours.
My ways, My thoughts
My feelings
Show us all something
new; if we will learn to
listen, see, feel
differently
too.
Poem submitted by Sara Conlon whose favourite charity is Autism Family Support
Jack and Jill
Jack the twitcher
Twerks and jerks
Muscles not as well behaved
Condition chronic
Quite dystonic
Stillness craved
All who gaze upon his mix
Of tortured gurning
Shakes and tics
Though trying not to disapprove
Think that maybe
He could move
Not his limbs in random flight
But out the way
And out of sight
With Jill, his wife
They sympathise
‘Poor thing’ they say
‘To have to be
With Jack all day at home
To see him twisting
To the skies
And listen to him
Squeak and groan’
But Jill has troubles of her own
Conditions quite debilitating
To her dismay
She has a lack
Of symptoms on display
Though none can see
Her hidden pain
She suffers just as much as Jack
In a discriminating way
‘But why?’ They ask
And make a fuss
‘Has Jill a pass
With extra plus
Which lets her jumping Jack ride free
As long as he
Accompanies
His wife upon the bus
And why has she
A special key
That lets her use
Disabled loos
For those with poor mobility
To crutch or chair constricted.
To anyone
We see can run
That access is restricted!’
So neither
Jack nor Jill
Can get a break
From public scorn
Hidden, seen
The world’s unfair
If you’re afflicted
Or need care
From when you’re born
Poem submitted by Christopher Dallman whose favourite charity is:
Princess Alexandra Eye Pavillion
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Clumsy Child
You tripped over your own feet;
moved as if your body were bigger than the space around it.
Holding your hands out to make sure you fit,
knowing you didn’t.
Not like the other kids.
Couldn’t catch a ball, tie your shoes, button a shirt.
Simple things, like instructions,
a foreign language
that everyone else understood,
except you.
Growing quieter with every year.
Retreating from the world.
From us,
and all our expectations.
Poem submitted by Cathy Cole whose favourite charity is:
Dyspraxia Foundation UK
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