“MY DISABLED WORLD” – FOUR MORE OF YOUR POEMS

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In honour of my dear friend Sue

Good night, God bless,
To you my friend Sue.
You will be able to open your own door now,
Invite your loved ones in for tea,
You will see your boyfriend Jack again,
And You won’t be in any pain.
You will be able to walk,
And be able to talk,
You will no longer need your chair.
Good night for ever
God bless.
Your dear friend Susan

Poem by Susan Fletcher and submitted by her support worker Louise Reid

Susan’s favourite charity is the ‘Alzheimer’s Society’

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“Little White Pill”

Little White Pill
You’re making me ill
And I’ve had my fill
Of thee

Little White Pill,
I’m supposed to be chilled
But you’re starting a fire
In me

Little White Pill
I’m taking you still
While longing for years
To be free

Little White Pill’s
Moving in for the kill
Can I break away
And get clean?

Poem submitted by Simon Tayler – whose favourite charity is MIND

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My Condition

Don’t pin it on my condition,

Pin it on the discrimination,

The language that is just lobbed around,

What your brain sends down your sensory and motor neurones when you come across me,

I may differ from you, aesthetically, audibly, and how I

But it’s what you predict, not the authentic answer.

Don’t pin it on my condition,

What about the builders who constructed roads without drop curbs and the fact there’s no way of knowing whether streets have them-so I have to pause and navigate my route rigorously?

Or the printers who didn’t design a braille alternative for menus and books and packages so I have to get someone to read the contents out and have certitude they are accurate, read at their pace?

What about the engineers who left the flaring red lights just for fire engines and ambulances and the people who when there’s an important announcement, don’t think to have subtitles or a BSL interpreter so my independence is snatched and I feel like I’ve been plonked on a murder mystery board game?

What about the manager at an airport or club who didn’t designate a quiet place to go when my sensory reflex is on super assertive mode?

Or the author and their agent who didn’t specify they wanted the calligraphy available on yellow pages or in a bolder font?

Or the manufacturer of my computer that I type phrases into, the voice is droning and there is an off-putting silence when I type my answer that isn’t a ringer to my vivacious, exuberant personality?

The thing is, I would let that drift in the breeze if they demonstrated a positive inclination,

The offer to help, a growth mindset,

I don’t mind if you’re ambivalent,

I just hope you communicate with me,

And see that I’ve got humour,

I’ve got wit,

When you sprint, I zip round in my chair, When you see something, I feel it with all my senses,

When music purrs into your ear, I feel the vibrations through my feet,

When you read or write something, I have to be creative and shuffle the information,

When you talk contracting the strings of your adam’s apple , I talk with my hands, computer or symbol book,

Yes, sometimes I feel down when I see my peers undergo tasks so easily,

How quickly they can get dressed,

How they can just enter a place or book an event without having to check access,

How they can fly through pages of a book, their cognitive wheels hardly churning,

How they don’t get underestimated just because of an impairment,

Sometimes I get praised for something when I’m just coping with life,

But with my condition,

I have zany experiences which make me more creative,

I feel emotions twice as potently as you which makes more emphatic,

I’ve learnt to shine light on the things that put me at a disadvantage,

That’s why I don’t call it a disability, That’s not the problem,

Your outlook is,

What leads to mental perishing

Poem submitted by Matilda Barrowman – whose favourite charity is AMAZE

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Eyes, look to me

Eyes, look to me.

Our eyes don’t meet
Yours turn away from me.

Meet mine eyes
Which are true to yours.

Look to me
And you shall see,
Someone who is
Familiar to you.

So look at me,
With eyes straight
And we’ll both be
Together face on.

I’d like to meet
Your eyes,
So please
Don’t turn away from me.

Just meet mine eyes
And be seen to me.

Then maybe you can be
Someone who will
Become closer to me.

Poem submitted by Jenny Dooge – whose favourite charity is WWF